I’m so grateful for this community. Thank you for your messages (and calls!). As they say, tomorrow is another day — and today was a better one.
We met with John’s neurologist and after much discussion, have decided to try risperdal to see if it will decrease his manic night-time episodes and maybe even lessen the daytime stims. It feels like this awesome decision though, which is why I made Twins Dad come home in the middle of the day just to talk through my fears of anti-psychotics with the neurologist. We are assured the dosage is small and may or may not help, it’s all a shot in the dark. Not the vote of confidence I’m hoping for, but…
I am desperate. Desperate. And I know medication has helped many of you. Our neurologist assures us the dosage is tiny and it might actually do wonders. Please, please, please. Please sleep.
I worry that he’ll turn into a different boy. Yes, the stims are excessive and often prevent him from focusing and learning, but he’s so exuberant otherwise, so alive. Part of me fears that will be tamped down. I don’t want him to change, I just want him to sleep.