Tag - writing

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A book! A book!
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BlogHer and Friendship
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"I Read Your Blog"

A book! A book!

I have spectacular news: The awesome women over at The Thinking Person’s Guide to Autism have published a book and I am thrilled and honored to be included on its roster of authors.

Thinking Person’s Guide to Autism:
The Autism Book You’ve Been Waiting For

Redwood City, CA December 19, 2011 — “Refreshingly free of dogma, disinformation, and heavy-handed agendas, Thinking Person’s Guide to Autism is an oasis of sanity, compassion, and hope for people on the spectrum and those who love them.” —Steve Silberman, senior writer for Wired magazine and autism/neurodiversity blogger for the Public Library of Science
“Thinking Person’s Guide to Autism is the book we wish we’d had when autism first became part of our lives: a one-stop resource for carefully curated, evidence-based information from autism parents, autistics, and autism professionals.”

I am so happy to be part of it. The Thinking Person’s Guide to Autism publishes a wide variety of voices on its web site and in the last year some important, thought-provoking conversations have taken place there. You can read more about the book here — and it’s available for purchase on Amazon. Congrats all!

BlogHer and Friendship

I can’t remember the last time I was away from my children for more than an overnight or how delicious it can feel. And not just any overnight, but TWO overnights, and nowhere near home but in NYC, a city that practically pulses with possibilities. Before you think me a heartless, cold mom, I was pining for them barely 24 hours in, flogging myself for abandoning them. I did quickly recover — it was New York after all, and I was surrounded by my tribe.

Blogging is powerful. There is no doubt it’s changed my experience of being a mother. Some days, it’s what keeps me moving forward. I’ve watched the annual trek to BlogHer and never imagined I’d have the ability to join, but then I heard about a planned autism panel with women bloggers I’ve read for some time: Stimey from Stimeyland, and Shannon Des Roches Rosa of Squidalicious, both parents of a child with autism. Suddenly it changed from I could never go, to How can I not?

I’m so glad I did. In many ways, meeting my tribe helped me meet myself again. I am a mother of two amazing special needs kids, and god knows that is my starring and most fulfilling role. But I am also a woman who has interests and passions separate of that and being around my tribe, a group of women each so special and unique in her own right, each struggling and celebrating the same things as me — well, it fed my soul, propped me up and made me proud.

I know that I would not have survived the last four years as well as I have without my blogger friends. Such a real group of women, from Christine my awesome roomie, to Niksmom and PixiemamaKristen and Jordan, Melissa and Kyra and Stimey!

I adore each and every one of you. It was a pleasure.

"I Read Your Blog"

As a shy writer, one who stopped writing for even the hope of mass consumption back in the late eighties, I felt something akin to panic upon walking into a room full of people, each who greeted me with “oh! I read your blog.” There is something unsettling about meeting your public – all who are friends of your father and stepmother – and have them know more about you than you’ll ever know about them. Of course, they probably would even without my blog to lay bare my every last thought, but still. I think I imagined that only members of my fellow autism-mom community read me, plus a few close friends (and obviously, members of my family).

It makes me feel even more shy.

But not really: is there such a thing as a shy writer? I mean you might be shy in person (as I am until you get to know me), but that usually disappears on the page once you’re off and running. I wrote in college because I found it was something I liked and could do reasonably well. I had dreams of writing for a living, of writing The Great Book. To be 22 again and imagine that’s possible.

Yes, I suppose it’s still possible — in another life. But I digress.

My stepmother celebrated her 60th birthday this weekend. My brother and I left our families at home and trekked north for the party. I weighed the strangers, the noise, the disruption of our routine against bringing them — and so they stayed home with their daddy. It was odd, though, not to have a child tugging on each hand, it was unusual not to wear sweatpants. It was great to talk to other adults — in person! It was terrific to feel true warmth from and for the woman who survived my teen years. It was so nice to feel unencumbered, even for just 24 hours.

What valuable “me” space. Now that John’s early morning episodes are becoming more rare, I’m the one waking at all hours to worry and pace.

We’re have an IFSP meeting this week because we asked our EI team for more services. A preliminary talk about this indicated that they would have both boys leave the classroom they attend 4.5 hours a week in order to provide John with more in-home ABA. That there is some arbitrary “cap” on the total number of hours they can provide each child in the entire county. It seems contrary to the IDEA, at least as I understand it. Not every child needs the same level of intervention, right? What if we need more and we’re denied?

Well, needless to say, this is what’s keeping me up nights. Oh, and my filthy house. The dirty floors, the accumulated dust on shelves, the bathroom tile turning black… it’s all conspiring to bring me to my knees. And you thought the autism diagnosis would do that. No, I’m handling that okay, it’s all this other stuff. The dishes in the sink, the piles of dirty laundry. It’s the tick-tock of the clock and my office phone ringing. It’s getting Sam dressed and seeing with dismay that his jeans are waders. When did he get so tall? There are not enough hours in my day. I can’t get the space, the time, the psychic room to breathe… except for here, in my Blog O’Therapy.

Which I thank you for reading.

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